
| THE AMAZING GRAY FUND |
On May 16, 2000, our little super hero, Grayson was born.
Update to August 2012 Here is the update on my progress over the last ten days. Grayson is doing so-so, and we are managing his pain well at this point. I have been working diligently with our State Health Insurance plan and have filed a formal appeal to their denial for Grayson's out of state care request. We have scheduled the surgery date for September 7, but will have to pay for anticipated expenses of approximately $150,000 by September 5, in order to keep our surgery date. The Tumor Board at CHLA reviewed Gray's case again last Tuesday, and the Neurosurgeon's at CHLA stand by their opinion that surgery is not an option for him. Since it is necessary to remove the pressure that is causing so many problems around the brain stem, and both the Neurosurgeon at Johns Hopkins in Baltimore and Sloan Kettering in New York agree, I still feel this is the best option. Gray deserves the opportunity for the best quality of life possible for him. After the surgery we will start a more aggressive chemotherapy regimen, and it is important that we have the surgery first as the chemotherapy could potentially cause complications with bleeding in the surgery. It is my hope that we can raise this money in time, or get a favorable determination from the State Health Insurance plan in time to avoid being forced to start chemotherapy, out of fear of more tumor progression. Having the surgery in New York is the best option, and that in itself will difficult with travel and living expenses away from home. The Talbert Family Foundation has set up a tax-deductible charitable fund to enable people to donate directly towards Grayson's expenses associated with his medical situation.Please take the time to ask your friends and family, the way we are asking all of you to pass this along. We have supported many fundraisers for many families, and quality of life organizations for our kids, and firmly believe in paying it forward. We have a village of people that support us and the causes that we believe in, and we are so grateful for all of you. ~beLIeVE in miracles michelle and gray |
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